Advocacy groups offer a way to connect to people in your country who are involved in improving the lives of people affected by X-linked hypohidrotic ectodermal dysplasia (XLHED). These groups provide a way for researchers, health professionals, and patients to network and share information and resources. There are many organizations around the world that support the XLHED community.
By reaching out to a local advocacy group, you'll gain access to practical help and information about XLHED. Plus you'll get the latest medical news and information on local XLHED-community events.
Select your country from the list below to find a local advocacy group.
Belgium / Netherlands / Luxembourg
Germany / Austria / Switzerland
+353 87 695 19 79
Norwegian ED Society
Norsk ED forening
+47 976 76 460
Russia / Ukraine / Belarus
Swedish ED Association