Join the XLHED Network

Join the XLHED Network. Become a member of the community and stay up to date on the latest research, clinical studies, and a potential treatment being developed by Edimer.

We would like you to tell us a little bit about yourself. Please answer the following questions so we can get a better understanding of how XLHED has affected you. This survey will take 10 minutes, possibly less. Join now!

Thank you for your interest in the XLHED Network

You must be 18 years of age or older to join. If you have a caregiver over the age of 18 who would like to take this survey on your behalf, forward the link to them.

Click here to start the survey over!

Let others affected by XLHED know about the XLHED Network.

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You're already a member of the XLHED Network!

Great news—you're already a member of the XLHED Network. If you know other families or individuals who may be affected by XLHED—in your local community, through online support groups, or your doctor, etc.—let them know about the XLHED Network. Tell them they can help the XLHED community today—just by joining the XLHED Network!

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Thank you for joining the XLHED Network. You will receive an e-mail about genetic testing if you qualify. You'll also receive news about research and clinical trials regarding XLHED or this site.

Our Privacy Policy explains how your personal information is protected.



Get free genetic testing

Find out if you are a carrier for XLHED with FREE genetic testing. All you have to do is join the XLHED Network. You will be sent an e-mail if you are a candidate for testing. Please note that the genetic analysis is free, but you will be responsible for other costs related to the testing. These costs may include, for example, the doctor's office visit and having your blood taken. It's another important reason for you to join the XLHED Network today.