Studying the history of any disease carefully and thoroughly is really important in helping to find a cure for it. For X-Linked Hypohidrotic Ectodermal Dysplasia there are several studies that have been conducted that focus on the history of this disease as it pertains to those who have in and are involved in the studies.
The research history helps to provide more pieces to the puzzle when it comes to determining why this genetic disorder occurs. Most often, the history of the studies being conducted will help researchers to develop new drugs to help combat the symptoms of this disorder as well as give greater insight as to why the gene that is involved becomes affected.
The history for those who have Xlhed involves children who have been born with the disease and the symptoms they have presented with. This includes a careful look at the functionality of their sweat glands, the growth and condition of their hair and/or teeth.
Being as Linked Hypohidrotic Ectodermal Dysplasia is a genetic disease the history in those who are stricken with it goes back to birth. Some studies have been conducted with participants ranging in the ages from six months to two years. In some of these trials, drugs were used to determine if they could help with the symptoms.
One of the outcomes that resulted as a result of the studies was that it may be more feasible to treat the mother through the injection of drugs prior to the birth of the child.
The history in terms of research for Xlhed goes back as far 1981 when the National Foundation for Ectodermal Dysplasia was founded. This was an organization with the mandate of being dedicated to research for this genetic disorder. By 1988 families who had family members diagnosed with Xlhed began to participate in a study and since that time ongoing studies have continued.